The Lambda light chain number doubled in the last month. We had an appointment with our Doctor today to discuss this. He is recommending we change to a different treatment plan. She will stop the current treatment plan today and take a break until next Tuesday. Then she will take 1 mg/meter squared of Velcade on days 1 and 8 along with 20 mg of Dex and 20 mg a day of Revlimid on days 1 to 14 and then take 7 days off for a 21 day cycle. The Velcade will be given subcutaneous. She had taken this before as IV and developed peripheral neuropathy and still has it. So if it makes this worse she will have to discontinuous taking it.
The other issue is that her blood counts have been decreasing since she started taking the Revlimid. Her platelets is down to 47 now. Her immune system is also compromised.
Jerry, I am so sorry Rebecca's new treatment plan was not successful - what a struggle it's been for you both. But the break she will have, then the start of a new plan does seem to offer hope. Having time to gain some strength, bolster her platelets, and get the immune system on a more positive level can work wonders. please tell Rebecca that I will keep you both close to my heart, and send my most positive thoughts and good wishes for success this time around. Hugs, Karen
ReplyDeleteHoping this is a successful, tolerable plan. As Karen said, you've both been through so much. Prayers from Jersey coming your way.
ReplyDeleteThanks for the comments Karen and Denise. One shot of Velcade and her neuropathy already started getting worse. Her digestive problems seem worse also. We see the doctor on Tuesday for the next dose of Velcade and Dex. Her blood counts are not the best either which doesn't help.
ReplyDeletehello jerry, just thinking of you and rebecca, hoping that your way has been eased with new interventions that give hope for rebecca's improvement in her comfort level. know that you are not alone, and that i am sending positive energy and healing thoughts to you both. encouragement and hugs, karen
ReplyDelete