Monday, April 16, 2012

Current Treatment Plan Not Working??

The Lambda free light chain proteins continue to go up.  Rebecca stopped the current treatment plan a couple of weeks ago.  It was 1 mg/meter squared of Velcade on days 1 and 8 along with 20 mg of Dex and 20 mg a day of Revlimid on days 1 to 14 and then take 7 days off for a 21 day cycle.  The day she took the Velcade subcutaneous shot the peripheral neuropathy would increase.  It did seem to go back to the normal level after a few days.

The current plan now is to have a PET scan and bone marrow biopsy.    This is schedule for the first part of May.  Then all her records will be sent to Vanderbilt in Nashville to see what they can offer.

She has been indicating the back pain has been getting worse at times.  I wonder if the myeloma is located in the vertebrae and starting to cause more pain.  The PET scan should show the location of the myeloma. 


  1. hello, jerry - i have been wondering about rebecca and you, too. so glad for the update. sorry the new treatment plan was a disappointment, but glad the PET and BMB are coming up and i truly hope they will provide answers, then, that vanderbilt will come through with treatment with good prospects. since i was diagnosed with stage IV breast cancer in december (it's my hsb., hugh who has MM) we have a new, one-word mantra - BELLIEVE. i will be believing for rebecca and you that all you are hoping for will come to pass, and i wish you both comfort and peace on the new leg of the journey. warm hugs, karen

  2. I just hope that there are more research made to find treatment for Neuropathy with less pain. neuropathic pain

  3. hi jerry,

    just checking in to say hello, let you know i am thinking of you and rebecca, and hoping all has gone a little smoother for you both.

    i continue to BELIEVE that you have answers that have provided much more comfort and hopefulness. warm hugs, karen